About Us
APAHE is a non-profit, nationwide association, which was created in 2006, as a way of filling a gap in Portuguese civil society: an association that not only defended and protected the interests of people with hereditary ataxias, a form of rare genetic pathologies , incurable and degenerative, as well as alerting society to their existence and their devastating physical and psychological effects, whether for themselves or for those around them, namely caregivers.
Our job
- Support patients
- Disclose the existence of these pathologies and their effects on both a physical and psychological level, both on people and at home
- Support the investigation of these pathologies
- Update information through your website and blog
- Promote gatherings between members and anyone who wants to join them
- Raise funds to develop all these activities
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